Sophie Louise Spence is a little girl with a dazzling smile and the ability to light up a room. At twelve years old she should be attending dance classes, reading books and out playing with her friends.  But these simple childhood pleasures are out of reach for Sophie, because she lives every day with the challenge of the rare genetic condition Rett Syndrome

Initially symptoms can be vague but include speech problems and losing the use of their hands, while some children stop using eye contact and lose interest in toys. The disorder, which strikes as little girls are just beginning to learn how to walk and talk, means that Sophie suffers from severe physical and mental disabilities. 

But there is hope. Research into the condition has suggested that damage caused to the brain by the condition is not permanent and could be treated in the future. So, the community in Midlothian, Scotland set about raising funds for Reverse RETT, one of the charities funding the research.

A thousand people came together in a community show and we have now released a song from that show, dedicated to Sophie and all  RETT angels.  It is performed by local musicians and is called Listen to My Eyes The lyrics say what we think Sophie and all those who have lost the ability to talk and communicate would like to say to her loved ones.

I can see you, I can hear you, I just can’t tell you how much I love you!

If you would like to help us find a cure for Sophie and the thousands that suffer from RETT Syndrome them please buy the single on iTunes, Google Play, Amazon or one of the other online shops. If you have a few dollars or pounds to spare then please consider donating to our just giving page at www.justgiving.com/listentomyeyes or the www.reverserett.org.uk website. Thank you so much for listening and best wishes from Scotland.

Lyrics - Listen to my eyes

 

I can see you

I can hear you

I just cannot tell you

How much I love you

How much, how much I love you...

 

When I'm scared and afraid

And your hands they touch mine

I just wait for your words

Then you say that I'm fine

 

I can see you

I can hear you

I just cannot tell you

How much I love you

How much, how much I love you...

 

When you hold me and hug me

And you answer my cries

And you'll hear all I can say

If you listen to my eyes

 

I can see you

I can hear you

I just cannot tell you

How much I love you

How much, how much I love you...

 

 

When I fall and I hurt

And I've got such a fright

You just hold me in close

And you cuddle me tight

 

Instrumental Chorus

 

When I laugh, when I smile

And I brighten your day

I'd love to tell you lot's

Until then I'll just say

 

I can see you

I can hear you

I just cannot tell you

How much I love you

How much, how much I love you...

Written and produced by Tommy Lawson

 

Original

Jillian Neil

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